Health

DementiaSA – Upholding dignity

All information is taken from the DementiaSA website with kind permission by DementiaSA.

DementiaSA is a South African Non-Profit Organisation (NPO) that assists families, communities and health professionals who have limited access to private health care, to live with dementia or care for those with dementia.

DementiaSA is committed to upholding the dignity of all persons affected by dementia and places a premium on providing services in under-developed rural and peri-urban areas. It is at the forefront of improving the quality of life of those living with dementia and those who care for them.

  • DementiaSA weekly virtual support group

Support for carers and family members of people living with dementia is essential. Please see our Theory of Change. DementiaSA provides psycho-social support to carers and family members. These support groups provide a safe, virtual environment where people going through similar experiences share in a supportive, non-judgemental and caring space.

All of our virtual support groups take place on the Zoom platform and are facilitated and guided by dementia experts from our team. These virtual support groups are free of charge.

We provided continued, ongoing support to families via a mediated, private WhatsApp group.

*Please note that access to our WhatsApp support group is subject to our community guidelines of care and respect for all members.

If you would like to join our support group, please email us at info@dementiasa.org

  • DementiaSA webinars

DementiaSA recognises that access to information and awareness of dementia is key to assisting carers and family members to cope with dementia and Alzheimer’s disease. DementiaSA has unique access to dementia and care experts and specialists. We provide facilitated online learning sessions which are interactive and free of charge. These webinars take place monthly and are advertised on our Facebook page. Visit our Facebook Page

To join our webinar and submit questions to our experts, please email us at info@dementiasa.org

All webinars are recorded and available on our YouTube Channel to provide an ongoing resource of information and awareness of dementia and Alzheimer’s disease. Visit our YouTube Channel.

  • Dementia help and support

DementiaSA facilitates support groups led by trained volunteers where family members, caregivers, nurses and others can learn and support each other. DementiaSA runs a 24-hour helpline 365 days a year and employs 2 social workers.

  • Family interventions

Our social workers are well respected, highly trained and experienced with older persons speaking English, Afrikaans and isi-Xhosa.

They are equipped to assist with complex cases where expert interventions are required and investigate reports of elder abuse.

  • Dementia training courses

DementiaSA trains home-based caregivers, residential care facility staff, nurses and community health workers in the specialized “person-centred care” required when caring for a person with dementia.

We train social workers to enable them to make better-informed decisions and family recommendations and interventions when a family member develops dementia.

  • Resources

DementiaSA has and continues to develop up-to-date and cutting-edge resources relevant to the South African context.

ADVICE SHEETS

An alphabetical list with advice sheets, eg.

 

This is a United Nations award-winning project, the concept of which is used successfully in South Africa to educate and create awareness of social issues and diseases. It has been endorsed and supported by the USAID, PEPFAR, Johns Hopkins, World Bank, the South African Government, Swaziland Government, Pfizer, Lilly, UNICEF, the Global Fund, and EU and many others. The books have been produced in 24 languages to date.

Illiteracy is a critical problem affecting all corners of the earth. No boundaries exist and it affects every race and ethnicity, age group, and economic class. This silent epidemic threatens over 785 million adults worldwide; one in five adults is still not literate with two-thirds of them being women. Africa, as a continent, has a literacy rate of less than 60%.

Unfortunately, the problems associated with being non-literate take place in critical areas of life such as understanding medical instructions and information.

The Speaking Book is a truly cost-effective ‘edutainment tool’, giving people access to critical, life-saving information they could never have accessed previously. Each book speaks to people in their own language, often through the voice of a local celebrity, arming individuals with important information while also empowering communities to live a better life.

The Speaking Book is made possible by funding through the National Lottery Commission (NLC). The Speaking Book may not be sold or resold.

Frequently asked questions concerning dementia answered in easy to understand language.

Follow the link: Frequently asked questions – DementiaSA

In the Media section of the website is a great collection of articles, book reviews, newsletter articles and videos.

The following book review, amongst others, are available on the website.

The Simplicity of Dementia: A guide for family and carers.

Buijssen, H. 2005.

London: Jessica Kingsley.

Reviewed by Malcolm Wallis, DementiaSA

Although published some time ago, this book which was originally in Dutch is a useful contribution to the literature on dementia. Don’t be confused by the title. It is by no means a simplistic account and is based on a great deal of reading, experience, professional involvement and reflection. The author has worked at a professional level as a psychologist with a special interest in ageing.

The book has been praised by reviewers in several publications. The title arises from his approach which is to avoid jargon where possible (this is despite his profession – we are told he is a psychogerontologist). More importantly, he is at pains to explain as simply as possible how changes in memory functionality play a role in dementia. The book has the considerable merit of containing numerous quotations from interviews and discussions which were mainly conducted with carers. The book should be of particular interest to carers but also to others concerned at the growing seriousness of dementia throughout the world.

Contact the Dementia SA National Help Line:

0860 MEMORY / 0860 636 679

OR

Contact numbers: +27 21 421 0077 / +27 21 421 0078 / +27 21 418 5888

General email: info@dementiasa.org

*All links can be followed by clicking on them.

Please support us – Please donate

DementiaSA relies on the support of individuals, members, the communities it serves and the business sector to render the essential services it provides.

 

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